Tourette’s resources

Tourette syndrome (TS) is a genetically determined neurological condition, the key features of which are tics, involuntary and uncontrollable sounds and movements. TS is a complex condition and covers a wide spectrum of symptoms.

From: tourettes-action.org.uk/

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The Mum Who Got Tourette's

Although originally aired in April 2020, this heartfelt documentary follows Elizabeth, who develops Tourette’s at 40, and explores how her extended family adapts - offering practical understanding that remains extremely relevant in 2024. 

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What Makes Him Tic?

This moving memoir follows a UK parent’s journey supporting their child through diagnosis, school interactions, and everyday life with TS - offering real, heartfelt insight (and practical empathy).

By Michele Turk

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Tics and Tourette Syndrome

A Handbook for Parents & Professionals

This handbook offers evidence-based, accessible strategies for families and practitioners- covering tics, habit reversal, associated conditions, bullying, and emotional support.

By Dr Uttom Chowdhury

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Tourette Syndrome: The Ticcers Guide

A memoir by sharing honest insights into living with Tourette’s as an adult. It highlights day-to-day experiences, identity, and how family and social life intersect with tics.

By Romy Worthington

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Joe Black on Tourette’s

RuPaul's Drag Race UK's dark cabaret sensation, Joe Black, sheds light on one of the most misunderstood neurological conditions, Tourettes. After having his tics dismissed as a “nervous twitch” and constantly being asked if he’s on drugs, Joe finally sets the record straight - dispelling myths about Tourettes.

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Jess Thom on Tourette’s

Join Jess Thom, writer, comedian, artist, and activist whose creativity is "changing the world, one tic at a time". In this chat with Ben, Jess discusses the power of spontaneous creativity, redefining what it means to be a wheelchair user and the importance of knowing when to ask for support.

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Tourette’s Got Him Fired

This week’s guest is the only TV presenter in the UK with Tourettes syndrome. Aidy Smith is award-winning broadcaster journalist making waves in the drinks industry. In this chat with Ben, Aidy unpacks Executive Dysfunction, living with chronic pain and how to thrive in the entertainment industry with Tourettes.

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Story Of The Tourette's Barber

Josh Hughes, aka The Tourettes Barber, has turned his experience with Tourettes into a powerful story of resilience and inspiration - with over a million TikTok followers. Josh opens up about the real dangers he’s faced, his struggles with social media censorship and battling depression. He also explores how is Tourettes and Dyslexia intersect.

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Facing Adult‑Onset Tourette’s

After a seizure and a brain tumour in 2019, Luke Manton was diagnosed with adult-onset Tourette Syndrome - leading to unemployment, stigma and mental health challenges. He speaks about why he’s campaigning to change diagnostic criteria for Tourette’s and the often-misunderstood causes of adult-onset tics.

CW: This episode contains offensive language which is involuntary aspects of Tourettes, as well as discussions of mental health and suicide.

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